Aka heaven in a tube. No seriously I am so in love with this magical lotion. I was given a sample of the Forever Living Aloe Heat Lotion and instantly fell in love. It's very similar to deep heat but kinder to your skin. I react really badly to deep heat. It brings me out in a horrific itchy red rash and feels like my skin is actually burning so I could never use it. Such dark times.

When I realised the Aloe Heat Lotion smelt of deep heat I was a bit nervous about putting it on my skin. I used the majority of the sample on my brothers back when he was in hospital. For once I was sensible and tested a tiny patch on my arm and hoped for the best. The whole ward smelt of deep heat and my brother said it really helped and massive bonus points NO REACTION so we ordered a tube pronto.


If you suffer from aches and pains in any part of your body then I highly recommend this. Its a bit pricey at £12.73 but it is so worth it. I put it on most nights before I attempt to sleep and my brother has it massaged into his back every night. My poor mum has to go round the house massaging us before bed (Thanks mum you're a star). I use it on my knees, hips, wrists, back, shoulder, elbow, neck. The list goes on. I also tried it for headaches but I prefer my 4Head stick for that as it feels cool on your skin.

The heat lotion does make your skin tingle but in a nice way not a I want to rip my skin off because its burning way like Deep heat did. It's also makes your skin feel pretty soft. Luckily I love the scent as well because that's pretty much my signature scent at the moment. Who needs perfume anyway?

We've had to buy another tube because my brother and I were constantly fighting over it and I now carry one with me wherever I go to help ease any pain when I'm trying to have a life. I'm quite often whacking out my legs to rub some of this in. Perfectly normal behaviour.

So if you're struggling with this crappy weather as much as I am then I definitely recommend a tube of this and a hot water bottle.

"When readers last saw Eddie Grant in Treasure of Saint-Lazare (2012), he was hot on the trail of Nazi war loot in the company of his on-again, off-again lover, Jen. As readers return to Eddie’s shadowy world of undercover deals and thugs in the employ of crime bosses, they find a quieter, more mature Eddie, now married to Aurélie, a scholar of some note, and living in pleasant domestic bliss. Onto this romantic scene come several of Eddie’s friends, who alert him to suspicious activity within his social circle, involving a man with criminal intentions and an interest in gold. Shortly afterward, a mysterious murder implicates another character from Eddie’s past. As he looks into the matter, Aurélie soon finds herself in danger; at the same time, Jen reappears in Eddie’s life, and he’s simultaneously drawn to her and eager to avoid falling into bed with her again. Soon, he and his comrades must track down another ring of criminals and protect themselves from fatal retribution"

I struggled to keep up with who was who at some points during this book but that's only because I've been suffering with really bad brain fog at the moment so it probably isn't normally a problem. 

This book is the sequel to Treasure of Saint Lazare but you can read it as a stand alone which I did as I didn't have enough time to read the other one first. Everything that you need to know from the first book is clearly explained to you so you don't miss out. However I will definitely be reading the first one now that I've finished this one.

The characters were amazing and the "villains" of the story were pretty intimidating. I loved the fact that the plot involved several countries and they were all described beautifully so it felt like you were there with them. I really need to visit Paris now.

The plot is complex but you get immersed into it which makes it impossible to put down. There's the Russian Mafia, gold smuggling, weapons dealing and kidnapping to get your teeth into as well as some romance. You get to experience the underworld of Paris and it's very exciting.

I also love the fact that you get to learn some interesting History along the way

If you love TV shows such as NCIS then you should definitely give this book a go. 

If you didn't go near the internet yesterday you might not have heard about Kylie Jenners latest cover for Interview magazine with her in a gold wheelchair. There are so many reasons that I am not okay with this. I tweeted about it and my phone has not stopped since and I woke up to about a billion (slight exaggeration) notifications so I thought I'd expand for you here.

I don't sleep well at all. In fact I'm pretty sure sleep hates me. I take forever to get to sleep and wake up a billion times during the night. Any sleep I do get is poor quality and not in the slightest restorative. Just one of the beautiful side effects of my chronic illness. For those of you who don't know I have Ehlers Danlos Syndrome and Fibromyalgia and my body is just a bundle of pain (with a hint of glitter).

I was contacted by N:rem asking if I wanted to give their 10 day foam tablet trial a go. As my sleep is so awful and I have tried every mattress in our house (we have a lot) and still can't get comfy there wasn't much to lose giving this a whirl.

The N:rem comfort trial* is for 10 days and consists of 5 tablets of different densities which include Firm, medium, soft & super soft. You then arrange these under your sheet depending on your needs.

If you read my Spectre review you will know that part of my disappointment was that I had really wanted to see Hotel Transylvania instead but it was sold out. Then Spectre let me down and my day was ruined (slight exaggeration).

Well you will be pleased to hear I finally got to see Hotel Transylvania 2 and it was soo much better than Spectre.



"Dracula and his friends try to bring out the monster in his half human, half vampire grandson in order to keep Mavis from leaving the hotel."


Hotel Transylvania is one of my favourite films and even made it onto my Top 10 non Disney animated films. 

I was so excited for this one to come out and like the child I am I stropped when I didn't get to go. Luckily my brother is just as much of a child as me so we had a cinema day last weekend.

This definitely lived up to expectations and I laughed so much. Dennis is such an adorable half human half vampire child and him & Winnie are too cute. Seeing how far Dracula will go to bring out the fangs in Dennis is hilarious and I loved the adapted version of twinkle twinkle little star. 

Drac also busts out some epic moves again and Dennis may actually top him in dance ability. 

Getting to see Mavis in the human world is also so funny. Although to be fair, I get that excited about different flavour slush puppies too. 

I was lucky enough to meet the babe behind Welsh Girl Problems at the #PartyAtTheAngel blogger meet a few months ago. So obviously I had to treat myself to some of her lush products. I mean how awesome are these.

This mug may be my favourite ever mug and I love getting this mirror out to check my lippie. YOu need these in your life and you can get them all in the fab welsh girl problems shop.

If you haven't see Aloha Lola Cards on Twitter have you been living under a rock? The adorable caricatures of bloggers have taken over twitter and such a lovely person behind the twitter account. She understood my despair over the lack of unicorn emojis when my phone wouldn't update and we had an in depth conversation about our love for Dominos. Mmm pizza

I am so in love with my caricature. Like seriously, how awesome is this?


You can check them out on Etsy where you can buy personalised cards for every occasion and your own caricature. If you are looking for a unique card for a friend then you need to check them out. Also treat yourself to a caricature. You know you want to. Buy yourself a card. Treat yourself

Ohhh and you can also follow Aloha Lola on Instagram to see all the adorable creations.

I am seriously addicted to home made soup at the moment. Like a little bit obsessed. I think I've had it for lunch almost every day for the last 2 weeks. It is so easy and tastes so good and soup and Autumn are such a beautiful pairing. Butternut squash soup has to be one of my favourites. It's just so good and you can add so many things to it.


To make this an even easier meal I got my mum a soup maker for Christmas last year because I am a top daughter. You need one in your life (a soup maker not a daughter)

Serves 4

1 Butternut Squash
Carrot
Red Onion
500ml vegetable Stock
Garlic
smoked paprika
chilli powder

Now me and my mum are not great at measuring as you can see by my ingredients list. We just whack it all in and hope for the best. So far so good though. With the handy soup maker, which I recommend for all of my fellow sick people - it is soo easy, you just chuck everything in put the lid on & turn it on. Then in 21mins you have delicious hot soup. Magic.

However you can make it the good old fashioned way and just cook your veg & then add the stock and bring to the boil and simmer for a bit. Then you just blend it all up to delicious soupy goodness. Seriously does it get any easier

Then you can add whatever seasoning takes your fancy. I am obsessed with Smoked Paprika at the moment. I use so much of this stuff and it is soooo good in this soup. Heaven in a bowl. I also like to add some chilli powder for a bit of a kick. I only add it to my bowl though because my family are such babies (soz mum).

And that is the end of the least detailed and probably least helpful recipe you have ever read. Seriously just bung it all in, blend and season. Make it up as you go along. You can also add celery (vom), potato, pepper. The choices are endless.

I've been meaning to put this up for a while but life just got a bit hectic. I recently reached 200 followers on Bloglovin which means the world to me. Then in the same week I hit 1,500 Twitter followers and 550 instagram followers which was clearly a sign I needed to do a milestone giveaway. My first ever give away. Im excited.


So I decided to do a random bundle of goodies of things I've been loving at the moment.

Whats in the Bundle

• Unicorn Ring Holder - I am obsessed with unicorns and this is so cute and looks great on my dressing table so I had to get one for this
• I Wish This Was Wine Mason Jar - If you read my cute cups post you'll know I have a lot of these kind of glasses and they're so handy
• Yankee Candle Cassis Votive - I mean who doesn't love candles
• Gold Star Midi Ring - I am in love with midi rings and wear 2 constantly
• Prairie Charms Hair Bands & Unicorn Bow 
• Gold Notebook - Every bloggers essential and instagram worthy
• Rimmel Salon Pro Nail Polish in Rhythm & Blues - I am addicted to dark nails now that its colder
• Collection 2000 Nail Polish in Bongo Beat  - Everyone needs mermaid nails in their lives.
• Colourpop Matte Liquid Lipstick in Midi - I made a colourpop order using a mail forwarding service and couldn't not get something for this so I went for a nude.
• DorkFace Customised Card - I am so in love with Jemma and her art and wanted to make sure someone else got to experience her amazingness. I am still so obsessed with my mermaid in disguise card (Not Pictured).

I went to see Spectre last week and I was so disappointed. I love a good action film and even though Im not Daniel Craigs biggest fan James Bond usually delivers.

I had never heard of Finley Martin before receiving The Dead Letter* to review but its safe to say I will definitely be checking out more of his work. I really enjoyed this book and if you are a fan of the crime/detective genre then I definitely recommend it.  



"It is 2001 and the police constable's girlfriend is murdered in a fit of jealous rage. When the constable realizes what he has done, he manages an elaborate cover-up. Only one person knows the truth. 

Flash forward to 2012. Anne Brown is still running her late uncle, Bill Darby's, detective agency after spending four or five years as his assistant. One day, the postman delivers an eleven year-old letter. The letter is addressed to her uncle from a woman named Carolyn Jollimore. She says she has evidence about a murder and begs for help from Darby. But Bill Darby is dead. And when Anne looks up the letter's author, she finds that Jollimare too is now dead.

Troubled with the evidence at hand, Anne must decide if she should investigate this eleven-year old murder."

This book jumps straight into the nitty gritty storyline which I love. It is different to most other crime books in that it tells you who the murderer is in the first chapter but you are the only one that knows. You get to follow the journey to see if & when anyone else works it out with a few twists along the way. 

There is still some mystery though. The first chapter also starts with an affair and a pregnancy and we don't know who she had an affair with and who the father is. So there is still the mystery of who else could be involved in the drama. 

Anne is an awesome main character who is dedicated to finding the truth no matter who/what stands in her way. The storyline does go off on a few tangents relating to Annes life that don't really have a huge importance to the storyline but it makes you get to know her character more. She's only human.

 I'm a huge lover of the crime genre and thoroughly enjoyed this book.

The swatch below uses the gorgeous berry red Lady In Red Kisstick* which I am now obsessed with. It is such a gorgeous shade. You can see how dramatically the shade can change though with Colour switch. The last swatch is about 4 swipes of the colour switch and one of the Lady in red.

Story time, this is gonna be a long one. Once upon a time, when I was in the sixth form I used to drive to school because we live in the middle of nowhere and I was too classy to take the bus (never ready on time). This meant that I could drive my crappy body to the shop to grab some lunch because it was too far for me to walk. One miserable day me and a friend headed to co-op to grab a sandwich and probably some doughnuts because who doesn't love a good doughnut? As I am a disabled girl who is a blue badge holder I parked in a disabled space. Makes sense right? When I got out I noticed a guy giving me evils but I ignored him and went and got my foods.


When I came out the same guy was waiting for me by my car. He told me that I needed my disabled family member with me to park in that space and I couldn't just use my Grans badge because I felt like it. I politely told him I was the disabled member and tried to get to my car. He kept shouting at me, demanding to see my blue badge. It was raining, I was getting cold and wet and he let his giant boxer jump all over me. Now I'm a huge fan of dogs but it is extremely intimidating of a stranger to let his giant dog jump on a teenage girl let alone one who has said she is disabled. It nearly knocked me on my ass. He kept saying there was nothing wrong with me until I gave in a showed him that the photo on my disabled badge was in fact my face *Shock horror*. He had no right to pressure me into showing him personal information but it was the only way I could get him out of the way so I could actually get into my car. The police were contacted and he was found and cautioned and I'm pretty sure he wont do it again.

Since then I've had to start using my chair a lot more so it is very rare that I walk into a shop now. However, if I'm on my own and am walking a short distance I freak out that it'll happen again. I don't have the energy to fight my corner. Not that I should have to. I know I don't have to explain myself to anyone but when people are getting arsey and judging you you kinda feel like you have to defend yourself. Its human nature.

The other day I went shopping and took Wilfred, my electric wheelchair, because I wasn't feeling well enough to manually propel myself. I pulled into the disabled parking space singing loudly to Spice Girls. The guy in the car next to me was blatantly staring at me. Like not even trying to hide it. I mean I know I'm fabulous and my singing is top notch but really? I put my badge in the window and got out the car with him still watching my every move. Even when I made eye contact and smiled he still stared. Didn't even smile back. RUDE.

Annnnd then I killed poor Wilfred. I caught one of the wires trying to get him out the car and ripped it out. I then had to wrestle to get a broken electric wheelchair back into the car which was exhausting. The whole time this guy was watching me. I then felt like I was doing some sort of walk of shame when I walked away from my car without my chair. I spent the whole shop paranoid that I was being judged regardless of the fact that I was relying heavily on the trolley to support me. A trolley which only actually had two things in it.

Then came time to leave the shop and I realised I was panicking. I was actually freaking out that the weird staring guy was still going to be there and question me and I really wasn't in the mood to explain myself to ignorant strangers. Plus I'm one of those people that bursts into tears when they get angry which would just be totes awks. For a few seconds I was actually scared to return to my car because my disability is always questioned, even by medical professionals.


I have also been in a shop where I have almost asked the security guy if he would walk me out to my car because an angry looking guy had watched me walk into the shop and hovered around my car checking my badge.

I should not have to be walked to my car because people feel entitled to know what is wrong with me and know my full medical history. Chances are even if I told them what was wrong they wouldn't believe me because they've never heard of it and I'm "Too young" to be disabled.

NOT ALL DISABLED PEOPLE USE A WHEELCHAIR. It's not that difficult to get your head around. There are many reasons people need a disabled space which don't involve a wheelchair.

As usual I had so many plans to have this written and published this morning at an acceptable time. Then my body decided that it wanted to have a hissy fit. Soo I had to doze in the morning to catch up on some zzz's and try and escape epic knee pain. All fun stuff and now I'm awake when most people are heading to bed and still no sign of sleep.

I have wanted a new header for a while now to spruce up the blog and make it more me but I didn't really know what I wanted. When I saw that Jemma had started doing customised headers I knew I wanted her to do it. She is so talented and creative and I knew she would be able to come up with something amazing. All I asked for was a pink haired mermaid and oh my I am so in love. It is everything I wanted and now I just keep going on my blog just so I can see it. It also got my Dads seal of approval as I squealed when I put it up and had to show someone and he was the only one home. He didn't quite match my excitement levels but it was pretty close.



If you're not already following Jemma on Twitter and Instagram what are you doing with your lives? She is one of the nicest girls ever and her instagram feed is just too cute. Also if you want to be inspired to be creative daily you need to follow her blog.

If you don't need a new header but still want some of her art then fear not. She does personalised illustrations and custom work and she also has an Esty Shop where you can get adorable cards like these. How freakin awesome is the Mermaid in Disguise personalised card?
I fell in love with the pink haired girl for obvious reasons and when Jemma put it up on Etsy I have never purchased something so quickly. She also tweeted about needing people to buy stuff so she could buy more art supplies so really I was just helping out a friend. I love it so much and it looks so awesome up on my wall but I couldn't get a picture because the lighting sucks and it kept coming out yellow and gross.



So if you need a new header or just want a custom piece definitely keep Jemma in mind. She's honestly so lovely and talented.

So I'm a massive kid and a huge fan of animated films. I'm pretty sure the majority of my extremely large film collection is probably animated including nearly all the Disney films. Dreamworks is definitely competing well with Disney for producing some of my favourite animations. The Road to El Dorado, Shrek, How to Train Your Dragon and The Croods to name a few so I was pretty excited to add to new films to my collection. I may however need my dad to build me some more shelves soon. 

Home





I've wanted this for ages but as I'm poor I've been waiting for it to come down in price but I just couldn't wait any more. Then the week after I bought it, it dropped by about £3 so you're welcome guys.

At least it was worth a tenner. I've already watched it 3 times so I'm getting my moneys worth. I love it. The way Boovs talk is so damn adorable, everyone should definitely talk like that from now on. It has such a cute story line even though it's about an Alien invasion which separates Mother & Daughter. Tip and Oh become an unlikely pair trying to prevent a second alien invasion whilst finding Tips Mum. Its cute and sad and funny and I love it. 

Penguins of Madagascar


My mum thought I was joking when I said I wanted to watch this film so I had to buy it myself. Shocking behaviour. I decided when I had to stay overnight with my brother in hospital it was the perfect excuse to treat ourselves. I love the Madagascar films (third one not so much) and I saw the advert for it on the Home dvd and it made me actually lol so you know it had to happen.
This film has the most adorable start with cute fluffy baby penguins and it is definitely on a par with Madagascar. The one liners are hilarious and Dave the octopus is such an awesome villain. They storyline is also pretty adorable and I just want to hug Private and tell him he's a valued member of my team. Super spy animals and ninja like penguins going against an evil octopus is a winning combination. 

Sorry I disappeared. I've been in  France visiting my Grandparents and then I crashed for a few days because you know Queen of over doing it and all that.

I'm not normally a massive fan of the colder seasons as my body and cold do not get on. I'm a huge sun worshipper and love wearing shorts, getting tanned, going to the beach and being warm. Summer is my favourite. However this year I have found myself getting swept up in the huge love for Autumn minus the being cold bit.

I never thought I would be writing a post about soap but here we are. The Wilko Fruits Rhubarb & Vanilla Handwash has to be the most amazing smelling soap I have ever used so I just had to tell you guys about it. It smells just like rhubarb and custard sweets so it may give you a craving. Its so magical and at the bargain price of 95p.


I am currently on my second bottle as it smells so good. I nearly cried when we ran out and I had to go back to boring smelling soap. The smell lasts on your hands for ages and you will get caught sniffing them. A friend came round and after they used it I kept catching them with their hands on their face. Its too good to resist. For 95p it lasts really well and bubbles up with only a small amount and then you smell like a magical sweet fairy. They have a huge range of scents if you want something more fruity, less sweet etc and they are all awesome bright colours. There's coconut, lemon, passionfruit, orange, blueberry etc.. There really is something for everyone.

The hand lotion also smells amazing but it is not the best hand lotion I've ever tried. It does sink in to your skin really fast and doesn't leave them slimey. However it doesn't really feel like it adds any moisture to dry skin. If anything my skin felt drier after use. I would just stick to the soap for gorgeous smelling skin.

If you follow me on Twitter you will know that I am super clumsy and always spilling drinks. In fact I wear a bib when I eat dinner most nights because I'm so damn messy (True story. My Grandma gave it to me as a joke and I love it). This is mainly due to my chronic illness affecting the grip in my hands and causing spasms etc and also because I'm just a clumsy person.

Anyway I've been on a few shopping sprees recently and spent way too much money but I kept getting sucked in by adorable cups that are perfect for my sucky hands. They all have lids and/or straws and they are all adorable. One is even mermaid print (I squealed when I saw it in the shop). They are all pretty purse friendly as well (It may have been the 2 pairs of shoes I got that my bank account was not impressed with).

So I thought I would do a post on all the cute cups (for hot & cold drinks) I have that keep my clothes spillage free and are also great for travelling even if you are blessed with sturdy hands. Spoiler alert: I have A LOT.

Hot Drinks


These two are my absolute favourites and I take them with me whenever I'm travelling. I cannot leave to get in the car without one of these bad boys. I love the But First Coffee one and tend to use it around the house as well but man the Bodum one is amazing.

The only downside to this mug is that it is so damn good at its job that you have to wait at least an hour and a half for your beverage to cool down enough to enjoy. Plus side you can make 2 drinks at the same time and then by the time you're ready for your second one it's perfect drinking temperature. Win win.

Cold Drinks



Cups with lids and straws make the world a better less sticky place. I absolutely adore the cute mason jars with lids. The two smaller ones are from B&M and only a pound. There were loads of designs to choose from as well. Matalan also do some for £3. The bigger one is from New Look but I cannot find it on the website.


When I saw the mermaid cup in New Look I may have squealed a bit. It is perfect. Also the Unicorn bottle was too damn hard to resist. Unicorns and mermaids are life and I just couldn't ignore them. These are my main drinking vessels at the moment.


 I also have Penny the Penguin from the West Midlands Safari Park (my brother calls everyone clever/silly little penguins for some strange reason so we are obsessed with penguin themed stuff now). Its so damn cute and even has a carry strap so I can look super cool.


I also have a childs sippy cup for really bad days as its non spill and light enough for me to pick up. I can also have my coffee in it and drink lying down. This is the Tommee Tippee Easy Drink Beaker but I just went into Asda and picked one that was a nice size (and colour - very important). These are a life saver for bad days.

Helen has also done a post on helpful drinking aids for anyone who struggles. Its amazing and I've already added some of the things she suggested to my to buy list so go check it out

Last saturday I headed back to Bangor to meet up with my old flatmates and pretend that we were still students for one night. We stayed in an adorable hotel, watched the rugby and reverted back to drinking sourz out of the bottle and playing drinking games. Sourz was spilt, awesome selfies were taken and a lot of laughing occurred. However once we got to the club I felt sooo old.


Here are some of the thoughts that went through my mind in between drinking, dancing like a pro and belting out R. Kelly Ignition.

1. Why is it so expensive to get in the club? Back in my day...

2. Why does everyone look about 12? Am I really that old? Like seriously how did they get in?

3. Why is everything so sticky? Do I even want to know?

4. What is this music? Do I know this? Is this even classed as music?

5. I may have done a lot of embarrassing things but at least I never had to be carried out of the club by a bouncer or puked on the middle of the dance floor at 11pm.

6. Why are guys so creepy? Do they think this is actually gonna work. No one wants to sleep with you. Please leave

7. I really want a cuppa, is it bed time yet?

8. Whyy do I always get a drink spilt on me? I dont understand. Am I a drink magnet?

9. Yesss Chips time.

10. Thank you kind taxi driver for not being creepy but do you really have to charge so much?

11. Oh my god a bed has never felt this comfy. I never want to move who even cares about the massive patch of spilt sourz.

It was an epic night and the hangover was worth it. Massive shout out to spoons for their unlimited coffee and their epic breakfast. Also Lucozade you are my number one.

This week is Invisible Illness Awareness Week and my body sure as hell knows it. If you read my blog or follow me on the Twitter then you will know that I have Ehlers Danlos Syndrome as well as fibromyalgia, raynauds, chronic costochondritits and a few other issues. I also currently have a cold which has sent my pain into over drive. We should be exempt from getting normal people sick on top of chronic illness. It's not fair.

So here's a little insight into being as awesome as me.

These photos are still not me on a really bad day and I still have the remnants of the days makeup on so I look even worse in person. I must remember to get some actual bad day photos. Not that that is high on my priorities when I feel like death,

Yesterday morning I dislocated my hip getting off of the toilet which is an excellent way to start your day. Luckily I didn't have to get my dad to come help me because that would have been awks but he totally would have done because he's awesome. I was then awake for the grand total of an hour before I had to go back to bed for a nap because being awake is exhausting. Seriously all I did was drink a cup of coffee and browse Twitter. That should not be nap worthy. I then woke up from my nap with a beautifully dislocated shoulder which is always a fun way to wake up.

The other day I also somehow managed to pull a muscle in my back getting into the car (clearly didnt warm up properly before doing vigorous exercise). This then sent all of my back into an angry muscle spasm making moving and even breathing horrific. Soo I had to spend the rest of the day horizontal which caused my hips to drop out of place. Why is my body so damn complicated. I've been too exhausted to do anything but also in too much pain to sleep.

Today my muscle relaxants and pain killers seem to be finally working and my back is less angry and I can move without groaning and swearing. However, one of my ribs has decided it doesn't like living where it does any more and has decided to move in with its next door neighbour which is really really uncomfortable. Soo still no breathing for me. Who needs to breathe any way?

Today is the first day I haven't had to have a nap in ages but that may be because I didn't actually make it out of bed until 11;45am. I have however managed to get a lot of blogging done which feels amazing buuut has made my back a lil angry again.

I need to shower because I can't actually remember when I washed my hair & wet wipes and flannels have been my bestie recently. You don't understand how exhausting showering is. Some days it feels like running a marathon. There is so much involved in that one small act of getting clean and I don't have any to spare. It's also freakin painful. Some days even the pressure of the water on my skin hurts.

At the moment my illness isn't that invisible because I look like actual death or zombie chic as I like to call it. However most days you can't tell (minus the lil indicator that is my wheelchair). I still look fabulous with killer eyeliner and banging lipstick and (when its washed) freakin awesome hair but my body is still falling apart. When you see me there is a 99.9% chance that I am in pain, sleep deprived and needing coffee.

Just bear that in mind when you judge someone for parking in the disabled spaces and looking fine. They could be in huge amounts of pain, be struggling to breathe, be super dizzy, want to vomit on you and you will have no idea. If one of your friends/family has a chronic illness and cancels on you a lot please remember it is not their fault. They would love to be able to do it. Maybe offer to rearrange days or even change the plans to something they can join in with like a quiet night in with films and food they can eat.

And don't forget if you need anyone to talk to or just want to know you are not alone I am always here. You can tweet me or email me or leave a comment.