So I have some extremely exciting news. I'm in a book. I was contacted a while ago by the beyond lovely Pippa from Spoonie Survival Kits. She asked if I wanted to put an entry towards a book called Dear Chronic Illness. I don't think I have ever been as happy as I was when I was told that my entry had been selected for the book.

What is Dear Chronic Illness you ask? Well, it is a book featuring a collection of short letters written by young people addressed to their chronic illness/ailment/disability. I want to emphasise that these are not sob stories and they are definitely not inspiration porn. They are real, down to earth reflections about life with a chronic illness.

They are light hearted, humorous and extremely relatable accounts of various experiences. Each account also shows a very different insight into the challenges encountered when trying to navigate life with a disability/chronic illness. You get letters from 16 different people all with their own take on living with a chronic illness.

The chronic illnesses include Fibromyalgia, Ehlers Danlos Syndrome, M.E, Endometriosis, Lyme Disease, Dysautonomia, Brain Tumour and POTS.


I would highly recommend giving this book a read if you have a chronic illness, especially if you feel alone. It makes you realise that there are others who understand what you are going through. It's also great for family or friends who are trying to understand what life is like for their loved one.

I really enjoyed writing my entry and it made me realise how much I have actually accomplished despite how shitty my body is. It also made me realise how much joy EDS has actually brought into my life. I would say 90% of my friends I made through my disability in some way.

Dear chronic illness comes in both ebook and paperback. You can get your copy here*. All royalties are donated to Spoonie Survival Kits. Each book will fund the enterprise and continued development of SSK. This will hopefully enable them to raise even more funds for charity and create more accessible opportunities for chronically ill/disabled people. SSK is honestly so amazing. Pippa has raised so much money for so many different charities.


The amazing people over at Wallace publishing are the publishers behind our little book and we are honestly so grateful for their support, especially Leesa Wallace. You can check out Pippa's blog post here for any info I may have missed.